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Dr. Caroline Ramsey Musselwhite

Friday, July 7, 2017

Social Communication and Storytelling (Thoughts for the ASF Conference, July 2017)



Social Communication: Adolescents & Adults Developing/Expanding Communication Skills
Part 2: Storytelling
by Deanna K. Wagner, MS/CCC-SLP
for the Angelman Syndrome Foundation Biennial Conference, July 2017


Summary:

Learning to tell a story, even if it is someone else’s story, helps build discourse skills. Using personal photos as the context, we can encourage/shape communicative functions of commenting, describing, and labeling in addition to information transfer.  Use fun apps to add pictures, videos and/or sounds.  Include videos in “About Me” books, including idiosyncratic communication.  This session will include demonstrations and discussion of features of fun apps for telling stories.

Objectives:

1.     Participants will define basic elements of story-telling for emerging communicators
2.     Participants will describe how idiosyncratic and non-symbolic behaviors can be used when co-constructing a personal story/narrative
3.     Participants will describe at least 3 reasons for sharing personal stories.

Session Highlights:

Storytelling can be used as a means of information transfer while developing social closeness and beginning discourse skills.  This session will provide ideas/strategies to expand on narrative and storytelling skills that help the emerging communicator establish and/or maintain relationships.  Using personal photos as the context, we can encourage/shape communicative functions of commenting, describing, and labeling in addition to information transfer.

Good “About Me” books contrast what is special about the individual while encouraging comparisons with others.  “I have blue eyes” can draw others into conversation about who else has blue eyes, or “What color eyes does mommy have?”  Use stories to teach others how to interact with the individual, identifying and describing how this person uses body language or idiosyncratic forms of communication to indicate agreement/enjoyment vs. rejection/negation.  Consider co-construction of an “I say ‘yes’ like this” book.  Make recordings and videos to share with others how and why we use the word “yes.”

Narratives describe events across time (Soto, 2006).  The ability to participate in sharing a full narrative develops over time out of experiences with basic discourse experiences (conversations, play, shared readings).  “My Day” narratives can be used to share information about events across the school day.  With scaffolds in place such as visual schedules, students can be involved in co-constructing narratives that can give interpretive meaning (e.g., art = good, fun).  These can be quickly recorded into a communicative system with a page for “my news” (Zangari, 2013). 

Finally, learning to tell a story, even if it is someone else’s story, helps build discourse skills.  Learn how to pause and then move to the next line in the story.  Use fun apps to add pictures, videos and/or sounds (Musselwhite et al., 2012).  This session will include demonstrations and discussion of features of some fun apps for telling stories.   Check out this section on our SPEDAPPS2 WIKI for some inspiring ways to publish writing. 

During this session I will spend time demonstrating/exploring/discussing how to make stories, starting with the basics of using www.tarheelreader.org and Pictello, and moving on to ways to incorporate videos from Explain Everything into GoTalk NOW books.  Readers may be interested in the #4 Tip of the Month 2016 on Caroline Musselwhite’s website, aacintervention.com, for using GoTalk NOW to launch books in TarheelReader.

Here are a few of the highlights:
Using the iPad Camera Roll for Quick on the Fly Books
*      Take pictures using the iPad OR screenshots
*      Select photos in your camera roll and use the sharing icon (arrow jumping out of a box)
*      Make a new photo album and put pictures in it
*      Turn Switch Control ON, launch “Turn Pages” recipe to look through photos and decide if some need to be edited / cropped.
Read a book on the Tarheel Reader website (on the iPad) with “Turn Pages” recipe (speech option can be turned on at the first page)
*      Download your Tarheel Reader book as an ePub book from the Tarheel Reader website on the iPad and it opens in the iBook app. 
*      iBook app also works with “Turn Pages” recipe, or swipe on the screen
*      Add a Shortcut to the Home Screen, they think they are launching an app
Create a Tarheel Reader Account if you want to upload your own stories
*      Upload Photos, or search for images
*      Enter one short sentence for each page
*      Check back to see how others have rated your story
What words should we use? Text Matters…
*      Emergent Readers  -- use more words to provide enriched vocabulary
*      About me, My day, Kid in Story
*      Transitional texts often use repeated lines, consider using core words
*      Early Conventional texts – less words while readers are learning
*      Controlled vocabulary - Noun, verb, or adjective book
*      Beware of focusing too much on fringe vocab
Check out the Angelman Syndrome Foundation Communication Training Series Webinars
*      #14. Reading as Communication: Selecting Books with Caroline Musselwhite and Erin Sheldon
*      #27. Independent Reading: Text Types, Paper Books, and Digital with Caroline Musselwhite
About Me Books
*      Contrast what is special about the individual while encouraging comparisons with others. 
*      “I have blue eyes” can draw others into conversation about who else has blue eyes, or “What color eyes does mommy have?” 
*      Use stories to teach others how to interact with the individual
*       Describe how this person uses body language or idiosyncratic forms of communication to indicate agreement/enjoyment vs. rejection/negation. 
*      Consider co-construction of an “I say ‘yes’ like this” book. 
*      Make recordings and videos to share with others how and why we use the word “yes.”
*      Here is a fun “Hello” example by Jane Farrell.
About My Day
*      Narratives describe events across time (Soto, 2006). 
*      The ability to participate in sharing a full narrative develops over time out of experiences with basic discourse experiences (conversations, play, shared readings). 
*      “My Day” narratives can be used to share information about events across the school day.
*       With scaffolds in place such as visual schedules, students can be involved in co-constructing narratives that can give interpretive meaning (e.g., art = good, fun).  These can be quickly recorded into a communicative system with a page for “my news” (Zangari, 2013). 
Pictello works much like TarheelReader, only you can create stories without the need for an internet connection.  And you don’t need to worry about sharing personal photos with the whole world.  To create a story, just add a photo and 1 or 2 lines of text.  You also have the option to add a recording instead of text to speech.  Share your stories.  Here are some great examples we used at Angelman Camp last year that started out on Tarheel Reader and were converted:
      Noses 6439-4987
      Extreme ironing 5955-8938
      Blizzard 2239-9179
      Wheeling 4861-7652
      Who Did It 8185-9177
      Get Set For a Pet 5226-8770

      Lost Dog 2016-2049
Have some more fun saying “hi” with GoTalk NOW
*      Random greetings (use symbol that looks like a pole between messages)
*      Action = Jump to Page (e.g., jump to People)
*      Action = Play a Video
*      Use screencasting to add recordings, multiple images, highlight details
*      Save the video to your camera roll; add button action (multimedia) to play the video in GoTalkNOW
*      Save the video to YouTube; share link or add the shortcut to the iPad desktop
*      Upload an entire PPT and then mark up the images and/or add recordings
Start off easy, think about using predictable texts (repeated lines).  Here is a link from Dr. Gretchen Hanser for Predictable Chart Writing to get you started. 
You can also find many different stories on www.tarheelreader.org with repeated lines.  If you search for “I like” books, you can find a great mix of personal stories and some funny rhyming ones like this one from Jane Farrel. 
What do you like?
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Session References:
Musselwhite, Wagner, Buell, & Wilcoxon, 2012.  Cool Tricks with New Apps - AAC Intervention.com   http://spedapps2.wikispaces.com/
Soto, G. (2006). Narratives of Children who
Need AAC: Assessment and Intervention
Considerations. ASHA Convention. Miami.
Zangari (2013). Narrative Skills for People with AAC Needs. http://praacticalaac.org/strategy/narrative-skills-for-people-with-aac-needs/


Session Resources:

Beukelman, D. with Fager, S. and Ball, L. (2006). Use of AAC to enhance social participation of adults with neurological conditions. AAC-RERC State of Science Conference. www.aac~rerc.com.

Beukelman, D. and Mirenda, P. (2005). Message management: Vocabulary, small talk, and storytelling. In D. Beukelman & P. Mirenda. Augmentative & Alternative Communication: Supporting Children & Adults with Complex Communication Needs. Third Edition. Baltimore: Paul H. Brookes Publishing, 15 – 34.

DeCoste, D. (1997). The role of literacy in augmentative and alternative communication. In S. Glennen and D. DeCoste, Handbook of Augmentative and Alternative Communication. San Diego: Singular Publishing Group, Inc., 283-333.

Dietz, A., McKelvey, M. and Beukelman, D. (2006). Visual scene displays (VSD): New AAC interfaces for persons with aphasia. Perspectives on Augmentative and Alternative Communication, 15 (1), 13 – 17.

Garrett, K. and Lasker, J. (2005). Adults with severe aphasia. In D. Beukelman & P. Mirenda, Augmentative & Alternative Communication: Supporting Children & Adults with Complex Communication Needs. Third Edition. Baltimore: Paul H. Brookes Publishing, 467 – 504.

Lasker, J. and Beukelman, D. (1999). Peers’ perceptions of storytelling by an adult with aphasia. Aphasiology, 13 (9-11), 857 – 869.
Light, J. and Binger, C. (1998). Building Communicative Competence with Individuals Who Use Augmentative and Alternative Communication. Baltimore: Paul H. Brookes Publishing.

Musselwhite, C. and Hanser, G. (2003). Write to Talk-Talk to Write! Second Edition. Litchfield Park, AZ: Special Communications/Life Skills & Technology for Independence.

Musselwhite, C. and Wagner, D. (2006). Poetry Power! Jump-Starting Language, Literacy, & Life. Litchfield Park, AZ: Special Communications/Life Skills & Technology for Independence.

O’Mara, D. & Waller, A. (2001). Joke telling as an introduction and a motivator to a narrative-based communication system for people with severe communication disorders. Computers and Fun-The 2nd British HCI Group One Day Meeting. http://www.computing.dundee.ac.uk/projects/writetalk/yorkfinalversion.asp.

O’Mara, D., Waller, A., Tait, L., Hood, H., Booth, L. and Brophy-Arnott, B. (2000). Developing personal identity through story telling. Write:Talk web site. http://www.computing.dundee.ac.uk/projects/writetalk/finalieepaper.asp

Rush, E. (2005). Supporting communication through shared reading. Part 2. Enabling Devices Newsletter #7 (Sept. 2005). http://enablingdevices.com/newsletter_7.aspx.

Schlosser, R. and Lloyd, L. (1993). Effects of initial element teaching in a story-telling context on Blissymbol acquisition and generalization. Jnl. of Speech and Hearing Research, 36, 979-995.

Senner, J. E. (June/July 2001). Emergent writing activities for dynamic display AAC systems. Closing the Gap, 20(2), 6-7.

Shane, H. (2006). Using visual scene displays to improve communication and communication instruction in persons with autism spectrum disorders. Perspectives on Augmentative and Alternative Communication, 15 (1), 8 – 13.

Shank, R. (1990). Tell Me a Story: A New Look at Real and Artificial Memory. New York: Charles Scribner’s Sons.

Stuart, S. (2000). Understanding the storytelling of older adults for AAC system design. Augmentative & Alternative Communication, 16 (1). 1 – 12.

Soto, G. (2005). Narrative skills of children who use AAC: Assessment and intervention considerations. AAC by the Bay. San Francisco, CA.
Stuart, S., Vanderhoof, D., and Beukelman, D. (1993). Topic and vocabulary use patterns of elderly women. Augmentative & Alternative Communication, 9 (2), 95-110.

Waller, A., O’Mara, D., Tait, L., Booth, L., Brophy-Arnott, B. and Hood, H. (2001). Using written stories to support the use of narrative in conversational interactions: Case study. Augmentative & Alternative Communication, 17 (4), 221-232.

L. Meyer, Approaching Communicative Competence Through Storytelling T/TAC Conference June 2006

Books by AAC Users:
Bauby, J-D. (1997). The Diving Bell and the Butterfly: A Memoir of Life in Death. New York: Vintage Books.
Jean-Dominique Bauby tells his own story (written by using an alphabet board and eye blinks) of having locked-in syndrome after suffering a massive stroke at age 43.
Brown, Christy. (1982). My Left Foot. Cambridge, MA: Applewood.
Brown eloquently describes his difficult birth, the hopelessness of his doctors, and the persistent love of his family, especially of his mother. He relates in detail that profound moment when, at age five, he inexplicably grabbed a piece of chalk from his sister's hand with his left foot and, with great difficulty and incredulity, traced the letter A on a piece of slate. For the first time, his family knew for sure that his intellect was intact. And for the first time, he could start to communicate with them.
Fried-Oken, M. & Bersani, H. (2000). Speaking Up and Spelling It Out: Personal Essays on Augmentative and Alternative Communication. Baltimore: Paul H. Brookes Publishing Co.
A collection of first-person accounts of how living with AAC has affected the lives of people with disabilities – includes essays, poems, and interviews.
Koppenhaver, D., Erickson, K. and Yoder, D. (Eds.). (2005) Waves of Words: Augmented Communicators Read and Write. Toronto: ISAAC Press.
An international collection of stories of people achieving literacy despite the challenges of their complex communication needs.
Sienkiewicz-Mercer, R. & Kaplan, S. (1989). I Raise My Eyes to Say Yes. Houghton Mifflin.
Ruth Sienkiewicz-Mercer was born in 1950. She has never spoken a word; never walked, never fed herself, never combed her own hair. Trapped in a body that is functionally useless, her mind works perfectly. This is her story.
Tavalaro, J. & Tayson, R. (1997). Look Up for Yes. Kodansha America.
A memoir of Julia Tavalaro who opened her eyes after spending seven months in a coma. Nobody in the hospital ward to which she had been consigned even noticed that she was alert. Paralyzed and unable to speak, Tavalaro had no way of making them take notice. She spent the next six years languishing in her bed, and although able to hear everything around her, she was unable to communicate. Tavalaro is able to recall her past in minute detail and weaves her memoir from threads of the past, her present, and her poems that transcend the two. Look Up for Yes is the courageous story of a woman struggling to find her voice and make it heard.

Social Commenting (notes for the ASF Conference)

Social Communication: Adolescents & Adults Developing/Expanding Communication Skills
Part 1: Social Commenting
by Deanna K. Wagner, MS/CCC-SLP
for the Angelman Syndrome Foundation Biennial Conference, July 2017


Summary
This session will provide ideas strategies to expand on social skills that help the emerging communicator establish and/or maintain relationships by not focusing primarily on requesting behaviors.  Instead of asking the person to request cereal, we can encourage extended social engagement by encouraging and practicing commenting forms of recurrence, negation, and disappearance.  And when we notice smiling and laughing when playing, we help/encourage more traditional symbolic ways to say “like.” 

Learning Objectives:
1.     Participants will list at least 3 social functions of communication (beyond requesting) and describe why it is important to move beyond requesting.
2.     Participants will describe how idiosyncratic and non-symbolic behaviors are communicative attempts by emerging communicators.
3.     Participants will be prepared to share at least one personal example of idiosyncratic or non-symbolic social communication.

The first thing we need to keep in mind is that everyone communicates.  Through the Communication Matrix, we can explore whether they are using idiosyncratic or symbolic means, and in all situations we need to be good investigators and observe both what and why they are communicating.  There are paper-based and on-line forms for the Matrix.  Below is a screen shot of the standard view of a teenager who uses conventional communication to make choices, ask for “more” of an object and answers yes/no questions because she can nod her head and look at what she wants.  She is learning to use an eye gaze communication system, and therefore her ability to request more of an action or to ask a question is still emerging.  She is also switching from using more concrete symbols to using abstract symbols on her device for a variety of purposes:  refuse/reject something, request more, request a new action or object, request attention and show affection.  Since she is very social (see that she has mastered “greeting people”), we are not limiting her symbols to only those that can be represented concretely, and she is using the abstract symbols purposefully (though inconsistently, since she is still learning).  



Here is my main precaution when using the Communication Matrix. Use the Communication Matrix so you can have a Skills List of specific behaviors, but please don’t consider it a hierarchy that all students need to pass through.  Requiring mastery of concrete symbols before moving on to abstract symbols could limit learning opportunities.  For students who truly need 3-D symbols, please see my entry on our AAC & Balanced Literacy Wikispace and check out the tactile symbols on the Project Core website.

The PragmaticsProfile by Hazel Dewart and Susie Summers is also a great way to document how somebody is communicating.  There is a preschool and a school-aged interview form.  The questions would also apply to adults who are learning to use alternate forms of communication.  Similarly, you could use the AAC Profile by Tracy Kovach to evaluate skill levels of the AAC user as well as communication partners as they relate to linguistic, operational, strategic, and social skills.

Consider purposes of communication (Light, 1988): Expression of needs/wants; Information transfer; Social closeness; and Social etiquette.  And consider communicative functions (Vantatenhove, 2016).  Even when communicating at the one-word level, young typically-developing children can express multiple functions: Greet or Part (hi/bye),
Request Assistance (help), Recurrence (more), Naming-Labeling, Existence (this, look), Nonexistence (gone), Disappearance, Rejection, Cessation (stop), Comments (like, yuck), Vocatives (mama, papa, baby),
Directive (help), Associative (up).

So, as we start our journey encouraging the first words on an AAC device and decide to focus on what are referred to as “core words,” we must be careful to remember to encourage their expressive attempts and model multiple reasons for communicating, keeping in mind the importance of the social aspects of these behaviors.  When a child reaches for something, we help him or her to say “want;” and if we notice smiling and laughing when playing, we help/encourage more traditional symbolic ways to say “like.” 

How about recurrence?  We can engineer the environment so it is necessary to ask for “more” of something.  I do this frequently when we are cooking, since we usually make this into a social activity.  I set the timer on the blender for just a few seconds and then wait.  Or I don’t add enough sugar and offer everyone a taste.  We also make computer time social.  Sometimes we use “turn the page” in an electronic book, or play/pause for YouTube videos.  I have even been known to e-mail instructions and leave out the last steps so it is obvious that somebody needs to ask me, “What’s next?”

Check out the Anatomy of a Conversation as described in the Can We Chat Book by Caroline Musselwhite and Linda Burkhart, available from TeachersPayTeachers.  Here are suggested conversational messages from 2001.  Do you think they have changed much?


The more we understand and can navigate a robust communication system, the more we can model social forms of expression.  Check out the ways we can expand and model social engagement using expressions on multiple devices.Please don't be concerned that the device you have is right or wrong, just remember to look for opportunities to practice social skills.

·      If using a device with icon sequencing, such as Words for Life, practice concepts linking from the LIKE icon, such as laughing, jokes, and fun. Or INTERJECTIONS – awesome, very good.

·      If using Proloquo2Go, be sure to check out the positive expressions pages (fun, cool, great, This is fun, I’m joking).

·      And in PODD communication books, the early and expanded functions books have whole pages with ways to say, “I like that” (e.g., clever/smart, fun, I like that).  The iPad app is called Compass with PODD from Tobii Dynavox, and it also has these pages.

If using TouchChat with WordPower, be sure to check out the Chat Pages from TALC AAC (Jill Senner).  Explore expanded/organized social pages from WordPower 20, 24, 42, 42Basic, 48, 60Basic, 60.  These pages have been designed to expand availability of vocabulary to allow people who use AAC to perform a variety of pragmatic functions such as making/responding to greetings to/from others, maintaining topics using typical responses, and asking for/responding to requests for clarification during conversation. These pages provide quick words and phrases for participation in time-dependent activities, such as making a phone call, while still providing access to core vocabulary. The following pages are included: starters/greetings, closers, conversational maintainers, regulation vocabulary, social questions, repair strategies, manners, telephone and news.  The page of maintainers include some nice examples of positive, neutral and negative comments.

The AAC users that I work with at an Adult Day Program (ValleyLife AZ) love making comments on social media.  We check out Facebook photos and YouTube videos.  We practice responding to the prompt, “What do you think?”  I also encourage their communication partners to ask them this question throughout the day.  This draws out an opinion or comment rather than responding “yes” or “no” through body language to the question, “Do you like it?”

Moving on to negation…  It is critical that our students learn to say “bye”, to indicate they are finished, and to tell us when they don’t like something.  If they don’t figure out how to do this by using language, they will tell us by using body language and behaviors.  Again, the Matrix or the Pragmatic Profile will give us a snapshot of how this student is communicating.  Also helpful is the Student AAC Profile by Gail Vantatenhove, since this includes data forms so that we can see whether opportunities have been provided and indicate what form of communication the student chooses to use across multiple days. 

I have had lots of fun helping the adult clients I work with personalize the messages that they use for saying bye.  Here are a few:  Bugs Bunny farewell, Arnold the Terminator saying “hasta la vista, baby”, bye-bye butterfly, Daffy Duck saying “I’m outta here”, gotta go, guess I better go now, see you later, take care of yourself, etc.

Here is a link to some you may find fun:


References: 

Light, J. (1988). “Interaction involving individuals using augmentative and alternative communication systems: state of the art and future directions”, AAC, 4, 2, 66-82

Vantatenhove, G. (2016).  Normal Language Acquisition & Children using AAC Systems.  http://www.vantatenhove.com/files/papers/Common/NLD&AAC.doc

Using PowerPoint to Promote Literacy, Language and AAC in the Classroom

When:  Tuesday, October 17, 2017, Closing the Gap Conference

Who:  Presenters include:
- Dr. Carol Goossens (SLP-CCC, with PhD in Special Education)
- Dr. Gretchen Hanser (OTR with PhD in Literacy)
- Dr. Caroline Musselwhite (SLP-CCC, with doctorate in SLP, minor in Sp Ed)
- Laurel Buell (OTR with Masters in Language Disorders)
- Jeanmarie Jacoby (Special Ed Teacher and Assistive Technology trainer)

Where:  Minneapolis, MN 
Get more information here:  https://www.closingthegap.com/conference/workshops/


Comprehension Instruction for Students with Significant Disabilities: Beyond "Wh" Questions

When:  Closing the Gap Preconference Workshop, Monday, October 16

Who:  Speakers include:
- Dr. Gretchen Hanser (OT with a PhD in Literacy)
- Dr. Caroline Musselwhite (SLP with a doctorate in SLP, Minor in Special Ed)
- Erin Sheldon (MEd in Special Education)
- Deanna K Wagner (SLP-CCC with MS in Speech Pathology)

Where:  Closing the Gap, Minneapolis, MN
Information here:  https://www.closingthegap.com/conference/workshops/

What: